Sunday, September 27, 2015

Game changer

Since the chemo medication I was given for the last two treatments made my finger and toe tips numb, a different protocol and medication has been suggested, and accepted.

Instead of having just 2 treatments to go, and being done in Oct., I now have 6 to go.  

However, those 6 treatments (three weeks on, one week off, then three weeks on again)  are to be small doses, thus HOPEFULLY creating fewer side effects.

I will not be finished on 10/22 anymore, but instead on 11/12.

The plan is to schedule my weekly treatments in the afternoons so that I can work half days and not have to miss 6 days of work (as opposed to the two days I would have missed had we not changed the protocol).

It's still more time off of work, no matter what the nurse said, but I am hoping it will all be worth it.

I had a little difficulty with accepting a change in the end date.  I had held 10/22 up as my "eyes on the prize" goal for so long....but I really WOULD like to be able to feel again, and changing the medication will increase the chances of that.

I won't go into details about the clusterfuck that was the administrative process behind this change.  Good god, the communication was awful, and it caused me a substantial amount of anxiety.

But the good part is, we came to a decision, and are moving forward.

I have still been doing pretty well, but the numbness has not decreased, despite being on an oral medication that it supposed to help.

We will discuss increasing the dose when I go on Friday.

In other news, the weather has been spectacular, and we have had a lovely weekend.  Hoping for clear skies tonight for the lunar eclipse.

Happy Sunday, everyone.  (I say that in hopes that there is someone out there reading this!)



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