Sunday, January 18, 2026

Ramblin' on....

 Bobby Weir's public memorial was held yesterday, and it was streamed on You Tube. I am glad I got to see it.

On Friday night, my favorite home town radio station, WXRT, played a full concert, recorded at the University of Illinois at Chicago in 1987.  The date of the concert was April 11th, and we sat in the 11th row, and I had seat #11....I remember that it was snowing that night.

So, both of those things have been cathartic for me, and for thousands of other Dead Heads.

Moving into the new moon tomorrow, and moving on with our lives, forever Grateful for the legacy, and our memories.

My bone treatment on Wednesday went just fine, but the chemo pill-related digestive issues have been bad.  Yesterday was awful.

It seemed like it was going to be okay, at the beginning of the cycle, but it didn't last.  Things have gone back to being bad over the past week or so.

I messaged the nurse, and, though, when this happened in December, she had mentioned possibly including an additional prescription medication to help the symptoms, this time she said to add an over the counter anti-gas pill to the Imodium.  I guess she was hoping it would stop the cramping?  Not sure at all.

When I asked the nurse why we were not doing the prescription yet, she said that it might have the opposite effect, and cause constipation.  

At this point, I'd prefer that!  HAHA...sorry.... too much information.

Anyway, the gas pill did not help.  Yesterday, I had to take the max dosage of Imodium to get it to stop, and I recall that it was like this during my week off of chemo the last time, ruined my Christmas, and caused me to have to stop at public restrooms while out trying to do errands.

Being afraid to go out is deeply impacting my quality of life, so I will message her AGAIN tomorrow, and tell her just that.

My next doctor appointment isn't until the 28th, when I hope we can discuss either reducing the dosage of this pill, or switching to something else.

I also understand that they want to talk to me about participating in a study.

In the meantime, I will just keep taking Imodium prophylactically.   I'd LOVE to go run an errand to get OUT OF THE HOUSE today, and we have to go to a funeral on Wednesday.  

Hopefully, by that point in my week off of chemo (I start again on Thursday), I will be okay.  I don't remember how it went last time....if I was symptom free by the end of the 7 days off.

We are having a stretch of nights below freezing, which is good, but have still not had any more precipitation.  

Yesterday, with winds as high as 50 mph, we were under a red flag warning for wild fires.

It's supposed to be in the 50s this afternoon, after being in the teens over night.  Hopefully, that cold night means no more black widows on the hot tub!

Have a good week!








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